The EYE OPENING Reality Of Accessing Life-Changing Medications & FDA Bureaucratic Battles With Judy Stecker
Podcast:DC EKG Published On: Mon Apr 15 2024 Description: In this episode of DC EKG, former HHS policy staffer now activist Judy Stecker shares her deeply personal journey advocating for her son Wheeler, who suffers from a rare genetic disease. Peeling back the layers of FDA bureaucracy, Judy exposes the rigid, bureaucratic structure that obstructs access to life-changing medications. We discuss the stringent regulations that hinder innovation, ethical considerations surrounding clinical trials, the impact of Operation Warp Speed on expediting procedures, as well as invaluable insights on fostering broader accessibility to groundbreaking treatments.-Links-Judy’s WSJ article: https://www.wsj.com/articles/the-fda-could-help-save-my-son-from-a-rare-disease-bureaucracy-efficacy-7090ac82Wheeler’s Warriors: https://wheelerswarriors.org/our-storyFollow us: https://twitter.com/DCEKGpodcast